duchennemd.org Foundation to Eradicate duchenne is a non-profit organization established to find a cure for duchenne Muscular Dystrophy, the leading lethal childhood genetic disease. www.ppuk.org At 19 our sons will die without treatment of duchenne Muscular Dystrophy. Parent Project UK is part of an international movement that has been set up by parents and friends of boys with duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD) and is dedicated to finding a cure and viable treatments. DMD is the most common, most progressive and the deadliest type of Muscular Dystrophy. It affects one in 3,500 boys worldwide and is the biggest genetic child-killer. DMD causes severe muscle wasting so that by the time our sons are nine years old they will be in wheelchairs, and by their late teens they will be preparing for death. Join us today and get involved in our organised campaigns to demand a chance of life for our sons. www.ygyh.org Your Genes, Your Health, DNA Learning Center's multimedia guide to genetic, inherited disorders: Fragile X syndrome, Marfan syndrome, Hemophilia, cystic fibrosis, duchenne muscular dystrophyBecker muscular dystrophy, phenylketonuria, PKU, huntington disease, neurofibromatosis, NF, sickle cell, hemochromatosis,Tay-Sachs disease, beta-thalassemia, thalassemia, down syndrome, Alzheimer disease, polycystic kidney disease, genetic disorder,inheritance, autosomal recessive, autosomal dominant, sex-linked disorder www.livingfortoday.org Living For Today is an expanding resource to help parents of boys with duchenne Muscular Dystrophy. By Preparing For Tomorrow, it is easier to Live For Today. www.mdi.ie Muscular Dystrophy Ireland provides support to persons with neuromuscular conditions and their families through the provision of a range of support services. To find out more details click here www.mdas.org.sg Muscular Dystrophy Association (Singapore) is a self-help organisation committed to uplift the lives of people with Muscular Dystrophy. |