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lungsforlife.org The Lungs for Life Foundation provides financial assistance to those with cystic fibrosis and their families. cystic-l.org CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. Members include people with CF and those who share their lives: medical professionals, scientists, researchers, parents, grandparents, spouses, siblings, friends and significant others. cysticfibrosis.com Welcome to the community for people concerned with cystic fibrosis. Visit the interactive forums to find support and share information; celebrate and remember with the community. lymphedema.omno.org Lymphedema information center by and for lymphedema patients that focuses on our unique needs, questions and problems. Online textbook of lymphedema, types, stages, fibrosis, wounds, treatment options, complications. Bringing hope to all with this condition wishforwendy.org A Wish for Wendy is a Softball Tournament benefitting Cystic fibrosis Research. The event is held annually in Alpharetta, GA. www.abouttobi.com tobramycin solution for inhalation or tobi is an inhaled, aerosolized antibiotic indicated for the treatment and management of Pseudomonas aeruginosa lung infections in patients with cystic fibrosis. www.ambrygen.com Ambry Genetics Specializes in advanced genetic testing for Cystic fibrosis and other genetic disorders. www.cellscience.com A-Z biomedical information directory and Journal covering AIDS & HIV, Cancer, Cystic fibrosis, Diabetes and Nervous Disorders cfawareness.org National Cystic fibrosis Awareness Committee - The National Cystic fibrosis Awareness Committee (NCFAC) exists to serve as an instrument for advancing the public's awareness of the genetic disease, Cystic fibrosis. cfcfisrael.org Helping Children With Cystic fibrosis In Israel. Charitable, non-profict organization for helping families in Israel who have a member who has Cystic fibrosis www.cfv.org.au Latest information on Cystic fibrosis, Services offered by Cystic fibrosis Victoria, CF chat room and forum, free 65 Roses Magazine, CF shop, fundraising events. www.cysticfibrosisaustralia.org.au Cystic fibrosis Australia - CFA is a national body comprising member State Associations. It assists the member organisations to achieve common objectives by developing national education programs and collecting and distributing information about Cystic fibrosis (CF) at national and international levels. www.cysticfibrosismedicine.com Cystic fibrosis Medicine contains a large collection of articles on cystic fibrosis as well as cf related links, two forums, a chat room and a drug database. The site provides free information to professionals involved with the treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family. The site has been created and is maintained by a multidisciplinary clinical team who are actively involved in the treatment and day-to-day care of people with cystic fibrosis. www.cysticfibrosisvic.org.au Current information on Cystic fibrosis, Cystic fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events www.genentechcfendowment.org The Genentech Endowment for Cystic fibrosis is an independent, non-profit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying uninsured and underinsured CF patients. www.goodgulf.com Your link to Homebrew, Belgian Beer, Brewing Resources, Cystic fibrosis, The Strange & Bizarre mycysticfibrosis.com An online resource that helps people with cystic fibrosis (CF) monitor their health and improve their understanding of this chronic disease through support and education. pulmozyme.com Cystic fibrosis (a genetic disease) information, symptoms, and treatments from Pulmozyme.com. Manage lung function right from the start with Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. reachingoutfoundation.org Cystic fibrosis-Reaching Out Foundation is a source for Cystic fibrosis support and information. www.thebreathingroom.org Breathing Room facilitates candid and open communication between adults with Cystic fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives. esiason.org The Boomer Esiason Foundation Home page contains cystic fibrosis news and BEF Highlights. www.cysticfibrosiswa.org Cystic fibrosis Western Australia provides care and support, services and information for people with CF scleroderma.org The Scleroderma Foundation is a national nonprofit health organization dedicated to a three-fold mission of Support, Education, and Research to help fight this challenging autoimmune disease. www.sarcoidcenter.com The only web site written by a physician and dedicated to sarcoidosis. The purpose of this site is to provide information about sarcoidosis in a format easy to understand by all and to provide more detailed information for those who want it. The site will also provide a multitude of visual and interactive services for patients with this disease.> www.lintje.com homepage of Family Lint, watch our photo's, our cats, love for Disney, James Dean, coloring-pages etc. www.immd.de The IMMD is a leading Genetic Testing Laboratory located in Germany. Founded in 1994, IMMD currently provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood. ihavescleroderma.com Stories of real people who have scleroderma. Living and coping with scleroderma. A site by people with scleroderma, for people with scleroderma. Useful links and information. hepaware.com The TOBI Foundation, funded by Chiron, helps cystic fibrosis patients in financial need gain access to critical medication. CF patients can view information on the use of TOBI treating CF. www.aspergillustrust.org Aspergillus Trust a charity for sufferers of Aspergillus related illnesses such as Allergic Broncho-pulmonary Aspergillosis (ABPA) which is linked strongly to Asthma,Aspergilloma,Chronic Necrotizing Pulmonary Aspergillosis,Allergic Fungal Sinusitis and Invasive Aspergillosis. aduk.org.uk ADUK - Asbestos Diseases UK - A charity setup to offer support and help sufferers of asbestos related diseases elizabethnashfoundation.org Elizabeth Nash, Cystic fibrosis, charity, philanthropy, Liz Nash, foundation, CF |