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chargeinc.org CHARGE Inc. (Cure, Hope, Advocacy, Research and Global Education, Inc.) goals are to establish and coordinate support groups for patients; acquire and disseminate knowledge concerning CFIDS, FMS and related disorders; encourage communication and advocacy among our members, organizations, professionals and concerned individuals and to promote research for the cause, methods of diagnosis, treatment, cure and prevention of CFIDS, FMS and related disorders. http://www.chargeinc.org, http://chargeinc.org diabetes-mellitus.org The National Heart, Lung, and Blood Institute (NHLBI) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH) have collaborated with three leading private health organizations on a major public health statement to alert physicians, patients, and the general public to the INCREASING SIGNIFICANCE OF DIABETES MELLITUS. AS A MAJOR RISK FACTOR FOR CARDIOVASCULAR -lowering therapy generally should be more fibro-friends.org News and information on Fibromyalgia Syndrome, Chronic Fatigue Syndrome, Myofascial Pain Syndrome and other CIND-like diseases plus Advocacy, Support Groups, and Forums for sharing experiences, treatment methods, coping techniques, etc fm-cfs.ca FM-CFS Canada is a registered charity providing free Fibromyalgia and Chronic Fatigue Syndrome/M.E. information and a connection with support groups, and advocacy for the community. shareing-careing.com Breast cancer support and advocacy group. We are breast cancer survivors sharing our experience, strength and hope. www.a4.org.au Autism & Aspergers Advocacy Australia was formed in response to the growing demand from people with autism spectrum condition and their families who wish to have a more direct involvement in raising the profile of autism-related issues with the decision-makers, to government and the media. The aim of the advocacy organisation is to provide a voice on a national and a state and territory level for individuals and groups across Australia. anxietysupport.org To provide hope, support and advocacy for people suffering from debilitating phobias, panic attacks and/or agoraphobia by establishing self-help groups and providing public education www.cherubs-cdh.org CHERUBS is a non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia- visit our site and read some truly inspirational stories. dsresearch.org Down Syndrome Research Online Advocacy Group (DSResearch, Inc.) is aimed at support for scientific and medical research into down syndrome. www.eyesontheprize.org EyesOnThePrize.org, a support community for gynecologic (uterine, ovarian, cervical, endometrial, vulvar, vaginal, gestational, fallopian tubal) cancer survivors, offers survivor stories, answers to questions, resources, discussion, support group database, advocacy, and more about reproductive cancer and sarcoma. www.geneticalliance.org Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. www.healthlinkplus.org HealthLink Plus: Your consumer health prescription to general health, health care providers, medical research, insurance, wellness, mental health, and alternative medicine. Topics include government sites, doctor finders, Medicare/Medicaid, nutrition, sports medicine, advocacy and support groups, and mind-body medicine. www.nccnhr.org The National Citizens' Coalition for Nursing Home Reform, a national non-profit consumer advocacy organization for nursing home residents, offers information on staffing in nursing homes, citizen advocacy groups, long term care ombudsman programs, how family members can advocate for good care, and government policies, laws and regulations affecting residents. The site includes fact sheets on malnutrition, neglect and abuse, restraints, and resident rights as well as listings of agencies and organizations to contact regarding complaints about poor nursing home care. www.patsainc.org Information, advocacy, support groups and referral services for Tourette Syndrome patients, and their families www.sabin.org This website's goal is to provide more information and links to scientists, researchers and the general public regarding the major initiatives of the institute in the areas of vaccine research and vaccine development, education, and public policy and advocacy. The SVI is dedicated to continuing the work of Dr. Albert Sabin who envisioned the enormous potential of vaccines to prevent deadly diseases. We bring together diverse groups of cutting edge scientists with leaders from academia, the private sector, industry and government to generate and share new ideas and data to accelerate vaccine development and advocate sound immunization strategies to combat diseases. www.sharecancersupport.org SHARE is a not-for-profit organization that offers survivor-led support to women with breast or ovarian cancer, their families and friends. SHARE's unique support model assures that no one need face breast or ovarian cancer alone. Drawing on their own experiences, cancer survivors help others address the many emotional and practical issues that arise from a cancer diagnosis. SHARE empowers individuals and communities to advocate for increased access to care, improved treatment modalities and quality of and increased research funding. SHARE's services include hotlines, survivor-led support groups, wellness programs, educational forums, and advocacy activities. All programs are free of charge. ustoo.com Us TOO helps prostate cancer patients and their caregivers find the resources they need to fight their disease. Us TOO provides support groups, patient education, advocacy, and treatment information. www.trepan.com The International Trepanation Advocacy Group is dedicated to accumulating the largest knowledge base of information about trepanation ever before assembled. www.culcasg.org The Cuneo Lung Cancer Study Group -o CuLCaSG o Associazione Cuneese per lo Studio e la Ricerca Clinica sul Cancro del Polmone -, along with the newly founded Charity ALCASE Italia (Alliance for Lung Cancer Advocacy Support ed Education - Italian Chapter) make up a unique non-profit reality called Associazione CuLCaSG - ALCASE Italia. CuLCaSG is composed by doctors, nurses, and other health personnel and is mainly engaged in the diagnosis, treatment and followup of lung cancer patients. It is located in Cuneo, an Alpine town of north-west Italy, and cooperate with local health bodies of the Italian National Health Service. CuLCaSG promotes the clinical research on Lung Cancer. L'ALCASE Italia is formed by ex-patients and volunteers. It advocates for the needs and rights of people suffering with lung cancer, supports patients and their families, and try to increase the general awareness about the disease. comarecovery.org Coma Recovery Association, Inc. is a non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. www.wvaids.org Assisting people of all ages who are infected with or affected by HIV/AIDS to live an independent and integrated life with dignity in the community. uoa.org UOA is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people who have had or will have intestinal or urinary diversions. ostomyalternative.org UOA is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people who have had or will have intestinal or urinary diversions. |