deafblindinternational.org quality of life, disability, sensory disability,sensory loss, visual conditions, sensori-neural hearing loss, DbI regional conferences, Latin America Network, IAEDB, International Association for the Education of the Deafblind, communication, total communication, sign language, ASL, BSL,ISL, Tadoma,Hand-over hand, Vigotsky, Alstrom syndrome,Palister-Killion, Prader Willi, Refsum, Batten disease,Stickler syndrome, Cockayne, Cornelia de Lange, Cri du Chat, Fetal Alcohol, Bardet-Biedl syndrome, Hunter syndrome, Hurler syndrome, Norrie, marfan Toxoplasmosis. Treacher Collins, Klippel Feil,Wolf-Hirschorn, St Michielsgestel, Aarlborg school, Condover Hall School,Treacher Collins www.marfan.org The National marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the marfan syndrome and related disorders. Our website has information on support services for marfan syndrome, research, education and information for medical professionals on the causes, diagnosis and management of marfan syndrome. www.ygyh.org Your Genes, Your Health, DNA Learning Center's multimedia guide to genetic, inherited disorders: Fragile X syndrome, marfan syndrome, Hemophilia, cystic fibrosis, Duchenne muscular dystrophyBecker muscular dystrophy, phenylketonuria, PKU, huntington disease, neurofibromatosis, NF, sickle cell, hemochromatosis,Tay-Sachs disease, beta-thalassemia, thalassemia, down syndrome, Alzheimer disease, polycystic kidney disease, genetic disorder,inheritance, autosomal recessive, autosomal dominant, sex-linked disorder www.marfanworld.org A global information center providing links to marfan Syndrome Organizations aroud the world |